Tuesday, September 17, 2013

The Woody in Me

The Woody in Me

I wanted to be that girl.


I think it must have been Woody Allen that ruined me. 
I used to love to pretend I was Mitzi Gaynor while strumming my autoharp, singing “When the skies are a bright canary yellow/ I forget ev'ry cloud I've ever seen/ So they called me a cockeyed optimist/ Immature and incurably green.” 

 There I'd be singing lovely on canary sun and blue skies. I wanted to be that girl. I wanted to be called a cock eyed optimist! That could be me! The girl everyone thinks of as bright and sunny and lovely. The girl everyone looks to for a cheery disposition! I would take out the dictionary to diligently copy down the definition of optimist while furiously and quite seriously nodding my head in agreement. I became obsessed, asking questions at the dinner table, “Daddy who is the eternal optimist?” I had heard that phrase somewhere and it made me feel smart just to say it. My Dad would answer with some crazy intellectual response which made no sense to me anyhow about Voltaire or Pan or something. 

Then I saw Annie Hall and everything changed. I knew what I wasn’t. And that was a damn cock eyed optimist. 

I asked my ma just to be sure. “Am I an optimist?” She said “well are you a glass half full or a glass half empty kinda gal?”  Half glass full half glass full half glass full I would chant to myself as I felt my heart sink at the one chocolate I had in my hand.  I had to accept reality.  I felt no joy for that one chocolate but instead the sorrow of losing it. The reality of the matter was I always wanted more juice. I had anxiety when my glass would lessen in liquid. I grew tired of pretending that everything was joyful and while I had a wonderful childhood with a beautiful family and great teachers, I had been wearing the weight of the world on my shoulders since I was eight. I thought to myself, why keep pretending that damn glass is half full, it's empty and I'm thirsty.  Something Woody said must have struck me at that young age. Somewhere in the midst of his wisdom this boney arms akimbo little girl latched on and didn't let go.  "That's essentially how I feel about life - full of loneliness, and misery, and suffering, and unhappiness, and it's all over much too quickly.”  How could words be truer? Certainly not a lyric like “But I'm stuck like a dope/ With a thing called hope/ And I can't get it out of my heart!” I became more and more uneasy with the way things were. Who cared about assigned reading? Who cared about 321 Contact and Reading Rainbow? I was eight and soon I would be old enough to get my heart broken and not have a job. I started developing bizarre habits and rituals almost in an obsessive compulsive manner making my mother blink her headlights thrice every time she left the house in order to assure a safe homecoming later that night. I would stay up to two am thinking about the future and the inevitable death of my loved ones and the undeniable disintegration of the physical makeup of the world. I imagined it crumbling into the sea and taking with it my beautiful colonial American Girl doll Felicity I had saved up for by collecting allowance and the coins that slipped into couch cushions. I never really understood why I did this in my childhood but then to understand that would be to get everything else, the fears, the joys, the crying, the addictions. How strange and yet somehow sweet to yearn for identification in simply, positive thinking. Of course there really were many more identifications I made with many more things. Boys, girls, best friends, enemies, inanimate objects, books, barbies, and one particular stuffed bear that was perfect in touchy situations. I mean somewhere there must have been a hint of optimism. If not, how come I would spend so much time hoping? Always hoping that perhaps I could be happy go lucky. Even as a little girl I struggled with identity and the sometimes falsehood of what we wish ourselves to be. 

 And now it's come full circle.

No more sun” the doctor said.
Great” I said “thats fine, for how long?”
Never” she answered
No no no” I said “I get it but then after the steroids when can I go back in the sun?”
You don’t get it honey. You cant.”
WHAT THE FUCKING WHAT?
I'm confused.” I replied “what about swimming?”
No swimming” she said “at least not in daylight.” She actually looked at me surprised this would put me off so hard.
I'm sorry” I managed to muster, “this is the first I'm hearing all this”
Well” she replied coldly “you knew there was a problem, you see a rheumatologist regularly.”
I wanted my mommy. I needed someone to hug me and say nothing's gonna harm me not while she's around. Instead of this cold bitch telling me I had to be fine letting my fantasies of prolonged beach life go.
My life flashed before my eyes. My dreams of browning under the Maldives sun melted like the ice cubes in the drink alongside my beach chair. Brushed off like the sweat on my brow collected there by the hours of relaxation and rays. And I went deeper. How does a mom play in the park with her kid if she cant go in the sun? How does one be a mom if she can't be in the sun? How does one have fun in the sun if she can't...well you get it.
I went home and started the great descent into Internet research. You all know it too well.
Discoid Lupus. How long does it last? Does it scar? Will it go away? Discoid lupus and weed. Does marijuana cure discoid lupus? Likelihood of discoid lupus turning into systemic lupus. Natural remedies for discoid lupus. Will discoid lupus ruin my life? Will discoid lupus ruin my face? Celebrities with Discoid Lupus. (This was my heart dropping fave as results showed me Seal.  Oh shit.) Will I die from discoid lupus?
I started seeing statistics like 5% of discoid cases turn systemic which for some people is a great thing! A very small chance of this becoming a bigger issue. But obviously the Woody in me has a hard time going in that direction. I started thinking gosh here I am on the brink of having too many anti-phospholipid antibodies and now this brink of something else. Am I on the brink of hell? Wouldn't it just be my luck to be part of that rare 5 %.  I cried.  I hugged onto Aidan my husband who promised me no matter what and if this did anything to my face he would still love me. I felt downtrodden and desperate.  Scared that after this bout of prednisone my face might go back to the red, flakey, burney, itchy, dry, hivey and oy vey. 
But something deep in me, almost embedded in my soul, recalled that image of Mitzi Gaynor against that bright canary yellow south pacific sky (http://www.youtube.com/watch?v=p0DusO6ipLw) and I started praying that my mind would go in that direction. “But I'm stuck like a dope, with a thing called hope, And I can't get it out of my heart! Not this heart...” That instead of Woody I might follow Mitzi down this righteous path. That instead of the pessimistic realist I had become I could again start that search that had been ingrained in me from childhood. That I could find the cock eyed optimist instead of the Woody in me.                                
me in the sun.
me in the car.
                                      

Wednesday, September 4, 2013

Farewell to Arms (or cookies)

breaking up with cookies.
I love sugar.  I love cookies.  I love snickers.  I love sesame bagels.  I love sesame anything.  I love hemp milk. I love oatmeal. I love Teriyaki.  I love seeded bread.  I love bread.  I love Coca Cola.  Oh hot damn how I love Coca Cola, the sweet fizzy nectar that transports me home no matter where in this wide world I am.  Even though growing up we weren't allowed soda it still reminds me of the coziness of home.  I love cookies.  I love dessert.  I love apple juice!  How could I forget my sweet precious cold apple juice!?  Nectar of the Gods.  Coke and Apple Juice live as the happiest lovers of all time, walking around holding hands, brightening days, handing out badges of diabetes like proud dance cards. I love frying up bacon with brown sugar (lots of brown sugar) and having a midnight snack with a large glass of apple juice.  Followed by a cookie.  Have I mentioned?  Cookie I love you.  I sing you a song. I love pasta.  I love gluten basically.  I love fried chicken. I love mac and cheese.  I love Beer.  Beer beer yummy delicious refreshing beer. I think I've refused to accept no Beer yet.  Rice Beer drinkers?  Help a sistah out?  I also love many things I haven't mentioned here, fruits, vegetables, some meats, sushi. But I'm not here for those things.  I'm here for the cookies and the bread and the juice.
And just last month I was told I had to give it all up.
Gulp.
This isn't real.  I won't become someone who has to ask where the gluten free grain free sugar free oat free organic fun free isle is, will I?
My heart sank then found air then sank in the same rapid just been broken sorta losing it mode. Cookies flashed before my eyes in parades of cinnamon, chocolate, Mandelbrodt (my favorite), snicker doodle, like little golden babies going off to college and leaving me with an empty nest. Loaves of bread on perfect Italian vacations with coke in a bottle and lots of beer and wine followed by gelato and cookies waltzing rapidly out of my life.
All that love above? That a lot of broken fucking heart.  And for what?  What the fuck is an Anti-phospholipid Antibody anyway?  My rheumatologist Dr. Veturuapalli ( Dr Swamy.com ) told me I didn't even have the APLS syndrome (APLS) was just bordering it.  So why in the world was I about to trust this other man,  this nutritionist (Eric Miller) telling me I couldn't just cut back oh no I had to CUT what I loved most out of my diet. Quite frankly I decided to trust him because as wonderful as my other doctors were and are and continue to be in the this process, nobody mentioned what nutrition might have to do with anything.  Nobody but my trusted nutritionist.
Hence the adventure of blind faith (and making something fun out of something drastic...or well not really fun per say lets call it challenging.  Exciting even)
Oh, Let me mention what I don't love.
Cooking.
me thinking about no cookies and having to cook.

So while I may talk about what I'm having for dinner because everyone cares don't expect tantalizing photos of what I've whipped up or extreme successes in that department.  I'm no Cat & Mara Make Food and if all of a sudden I start posting that kinda shit please just be happy for me. Judge all you want.  I would.  Know that I might have changed but somewhere deep down be happy for me.
Cooking sucks.
Oh and before I forget, the lists of DONT'S include tapioca. Random.  And surprisingly I will not now lament the departure of tapioca pudding as I don't think I've ever even had any anyway.  Another no no was coffee.  Man that had me happy I don't drink coffee. Imagine you people out there who can't start your day without coffee, being told you're basically allergic. That's like them telling me no weed.  No please. Anyway I have some weird cross reaction to tapioca where my body identifies it as wheat.  More on that later cyrex takers (Cyrex cross reaction food sensitivity tests) Anyway back to the point, no tapioca means no mainstream gluten free bread that I actually enjoy like Udi's (http://udisglutenfree.com/) which while gluten free is actually delicious. Gluten free bread! It's healthy! Nope.  Not for me.  Just as bad.  So now I was to be one of those dreaded wanderers in the market making demands for grain free, tapioca free, gluten free bread.  Sometimes coming home with loaves so sad they cry tears.  Literally tears of sadness.  My husband Aidan Nemeth (http://www.tumblr.com/tagged/aidan-nemeth) the rock star turned day trader care taker extraordinare by the way has decided to come along with me on the dietary adventure.  A vegetarian who's gone chicken and turkey for me; that's love.  Anyway we've created a secret name for it whenever we are in the market looking so as not to appear obsessed with a fad.  We have code names for the words gluten free and organic which work just fine until we wind up lost in the market and end up having to ask anyway.
Now back to my distrust of the kitchen.
That weird place that gets dirty so quickly.  That produces mediocre dinners and fabulous cookies.
me and my kitchen.


So I start today sharing my adventure with an autoimmune condition.  Nobody knows what to call it but everyone says it's there. I start my relationship with my kitchen although don't expect any wonders in that department. And the start of the horrible lingering pain of my break up...with cookies.  Please join me again as I bitch about a problem that only seems annoying when your body is allergic to your own body.
Join me as I rant about movies and feelings and diets and marriage and autoimmune bullshit.
Until tomorrow when I write about some hive or tell you about the time I went to Maui for my honeymoon and broke out in burny itchy rashes all over my face and neck caused by who the hell knows?  Or the time my nutritionist told me my fasting blood sugar levels were pre pre-diabetic and I was like Whaaa? Oh the life THE LIFE.
-Lucy gets a clue





Tuesday, September 3, 2013

good lord I haven't written in a while.  so much has been going on
what can i catch you up on movie wise?
great gatsby was really awful man!
shit.
42 was sappy.
I haven't seen a good movie in a damn long time.